The M-CM Network works to improve the lives of families affected by M-CM.
Macrocephaly-capillary malformation (M-CM) is a rare, genetic syndrome first identified by researchers in the late 1990s. Many medical providers are unfamiliar with M-CM and affected children and their families face more questions than answers regarding the course of this condition.
M-CM Network provides comprehensive medical information about M-CM to aid in diagnosis and treatment decisions. Our goal is to establish a disease registry to collect data about affected individuals so that we can greatly expand the scope of what is known about M-CM. You can donate to help us meet this goal.