About Us

The M-CM Network is a not-for-profit 501(c) (3) organization that was founded in 2010. Our goals are to:

  • Raise awareness among families and the medical community
  • Provide the most comprehensive and up-to-date medical information regarding M-CM through our website and other media resources

Our ultimate fundraising goals are to start a disease registry and biobank. Our hopes are that such an endeavor will result in:

  • A better understanding of the natural history of M-CM
  • Clear and comprehensive medical management guidelines
  • Improved quality of life for affected individuals and their families