The M-CM Network contact registry will be used to inform individuals with M-CM and their guardians about:
- opportunities to participate in research
- opportunities to contribute data
- discoveries about M-CM that may impact care decisions
Registrants' contact information will not be shared with anyone outside of the M-CM Network. Registrants will be provided with contact information about relevant research and survey efforts. These initiatives will include our own internal projects as well as the projects of outside researchers.
We may use aggregate data from the contact registry to publish statistics about the incidence of M-CM. For example, we may use contact registry data to say how many people have M-CM, what their age ranges are and how they are distributed geographically.
We will not use this list for M-CM Network marketing or fundraising. If our policy about acceptable use of our contact registry ever changes, you will be notified. You may opt-out of the contact registry at any time by contacting us.
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