International Organizations

Association M-CM France & Facebook page

AMCM España (Spain) & Facebook page

M-CM UK Facebook page

Facebook Groups

M-cm ( Macrocephaly - cmtc ) Group - this Facebook group was founded by families in the UK and pre-dates the M-CM Network. We encourage affected families to join. It is moderated by UK families.

Parents d'enfant M-CM (Macrocéphalie Malformation Capillaire)

PIK3CA Related Overgrowth Spectrum (PROS)

Hats and Helmets

Big Hat Store

Big Head Caps

Custom Riding Helmet UK

Plum Enterprises Head Protection

Nutcase Street Helmets go up to 64cm

S1 Mega Lifer Helmets

Custom helmets from Hangar prescribed for epilepsy

Helmets for Large Heads -


Crocs stretching video

Store policies for split sizes - Nordstrom is known for their split sizes policy, but other retailers are listed here

Clarks UK has an "Odd Shoe Scheme"

New Balance - comes in very wide widths

Mt. Emey Shoe

Dr. Comfort - see "Double Depth" options

Snow Boots for young children - Stonz Booties, MEC Toaster Booties

Tsukihoshi Euro - toddler

Soft Star Shoes made to measure

Keeping Pace - children's sizes

Swedish Moccasins - Moccis UK, Nowali USA

ikiki's offer for 2 sizes

KoolBoots snow boots designed for AFOs

Other Links

Wonderfully Made a children's book about M-CM by Stephanie Moreland

Archived Macrocephaly-CMTC Site