Resources » 2012 Survey

Cancer and Tumors

Select All That Apply

Question type: checkboxes, open-ended "other".

Meningioma 0
Hemangioma 7
Renal Vascular Mass 0
Parapharyngeal 0
Hepatoblastoma 0
Wilms' Tumor 0
Other tumors or cancer:
  • Two small ones and both are gone at present..
  • Mass near spine - unknown type.
  • Liver spot currently being studies.
  • Large fatty cyst on top of right arm.
  • Undiagnosed cyst in brain that disappeared over time.

Has the person with M-CM undergone serum AFP?

Number of responses: 40/51 Question type: select one, open-ended if yes.

Yes 7
No 27
Unsure 6
If yes, how often?
  • Every 3-4 Months
  • Every 3 months until 8 years old
  • Every 6 weeks until recently
  • Every 6 months (2)
  • 3 times

Has the person with M-CM undergone abdominal ultrasounds?

Number of responses: 41/51 Question type: select one, open-ended if yes.

Yes 36
No 4
Unsure 1
If yes, how often?
  • Once (8)
  • 2 Times (8)
  • Every 3-4 Months (4)
  • Every 6 Months (9)
  • Last one age 8
  • Every 3 months until 8 years old, then every 6 months
  • One per year to age 5
  • Every 3 months until 5 years old, then every 6 months until 6 years old then once a year from then on.